Submitted by shootingstars on Sat, 07/19/2008 - 19:46
I refused to put underwear on Michael or to let in him the bathtub. He finally got so desperate to poop he went in and put his little seat on the toilet and went. Not very much but it is a huge break through!
Submitted by shootingstars on Sat, 07/19/2008 - 13:03
My son is such a couch potato. If I do not have the tv on he will turn it on. If he does not like the channel he will cry. I do tire of Disney Channel all day every day. Even if he is not watching Mommy cannot change the channel. I know another boy who has Asperger's Syndrom and he ios like Michael always TV TV TV
Monkey Trouble was on last night, and then repeated today. Michael loves that movie. The whole time he is sitting here yelling MONKEY. I may have to buy the movie. If it will help him work on his real words I am not going to complain about the tv.
On a much wetter note.. My mother is out of town this weekend, and rented a car so that I can have hers and go feed her pets... I woke up to a beautiful dawn thunderstorm. It was the type of rain that makes you just curl back up and sigh. I left the car windows open last night... I just know the seats are going to be soaked when we go to leave...
It's nearly 6:00 p.m. and Wyatt has just recently fallen asleep. I knew his whole sleep routine would be out of whack because of the respite debacle yesterday. I guess his body is tired because he's been up since 2 a.m. and he's had an active day. So I have to let him take at least a little nap before I ruthlessly wake him. The nocturnal cycle must be broken!!!
I spoke with my main mentor-therapist, Brooke, and she said I definitely need to give the respite sitter a firm schedule with a very detailed to-do list. She said if my sitter balks at it, then I will need to find a sitter with more energy.
Submitted by shootingstars on Fri, 07/18/2008 - 16:50
It is nearing 4 and Michael is supposed to use up 10 hours in 2 or 3 sessions but there is only another week available for him to use it in. I cannot imagine they take the kids that late. And I wanted him back before 6 so I can start supper.
I am wondering if they just are not coming. So I am going to call on Monday and tell them to shove the respite. Ok by then I will be in better moods. I will simply say they can give my hours to another family because I need something I can rely on rather than being told oh sometime after lunch and then nobody shows up. I asked specifically for a time and was denied. I was told they would get back to me with a time, and that did not happen. My son was left disappointed because I told him a girlw as going to come and take him to go play...
The respite sitter was here from 6:00 to 9:30 p.m. and didn't stop Wyatt from going to sleep at 7:00 p.m. She said Wyatt didn't feel well. Well, Wyatt felt well enought to get up at 2 a.m. and stampede around the house happily yelling and getting into things--he's still awake and it is 8 a.m. and time for therapy and the last day of summer school. That means we've had only about 2 hours of sleep.
I feel like I can't even think straight to make choices for the day and whatnot. How can I keep Wyatt safe if I'm practically catatonic from no sleep? My husband has said THAT'S IT, NO MORE RESPITE EVENINGS, ESPECIALLY ON WEEK NIGHTS. How can he function to get up and go to work all day if he's had no sleep because of "respite"? He says it's okay if I want to use respite during the day while he's at work. But after the summer, the respite sitter has a day job at a school.
Submitted by shootingstars on Thu, 07/17/2008 - 18:35
Today Michael's OT therapist commented that after a few more sessions he may be dismissed from therapy. But not because of his behavior and emotional blocks like last time. This time it would be because of the strides and progression he made. So this time I can be proud if they kick out.
Michael has learned how to draw smilie faces. It is so cute. He can also say his name now... But not in the right occasions. I was writting his name in marker on the paper we were coloring onn, so he scribbled and said Michael. But he does not say his name if you ask, or respond with his name when looking in the mirror or at self pictures...
Respit care is supposed to start tomorrow. Only I have no idea when they are coming to get him. Which makes me mad, because I think I should have a right to know when they are coming. I have to clean my house quick tonight because these people are fanatics. I have 10 hours to figure out for this month then re-apply. I decided I am not going to reapply. He will be in school next month. PLus if they cannot even set a time rather than saying oh Friday Afternoon, then why bother...
Tomorrow is the last day of summer school. After that...gulp...I will have no time to myself. No time to go to the store without Wyatt, no time to run errands without Wyatt, no time to take a leisurely walk with the dog. Virtually no respite from Wyatt's charming company for three weeks. Until day camp.
(Oh, I know, I am so whiny. There are millions of working mom's out there who get up and go to work everyday and their personal time during the week is probably about 30 minutes total per week, and that's counting the commute).
Next week a long-time friend is visiting from Oregon and bringing her brand-new baby, so I've arranged to have the babysitter come for three hours during the day. The sitter only had that weird time slot between lunch and dinner available, but I am grateful. I've used up all of my free respite hours so I'm going to have to fork out, but it will be worth it, definitely.