WyattsMom's picture

Life Skills

You know, I wonder if our therapy supervisors lose respect for us after a while because they're always asking us what our problems are and what we need help with. Maybe we make ourselves seem stupid and vulnerable. Maybe after a while, the professional problem-solvers go a little crazy after they present us with well-thought-out plans and we say, "Nah, that didn't work" or "Oh, I know it's been three months, but I haven't gotten around to buying that $40 egg timer you recommended."

Today I had a meeting with my case worker at the county agency. I told her that I have a huge network of parent-friend-mentors that I turn to daily for ideas and support. I asked for a DECREASE in program hours. Wyatt will still get to see my favorite therapists, but for shorter sessions. Basically, the case worker and I came to the conclusion that I pretty much know what to do or can figure out what to do. (I just need to do it). Therefore my need for this particular county funded program we're enrolled in is coming to its natural end.

Anonymous's picture

Next week is the big meeting where I will probably be handed down the judgement...

It does feel a little like a judgement...

Anyhow

I was wondering if anyone had any thoughts thinking back to their summary judgement about questions you feel you should have asked then and wished you had.

The Team that does the assesment can't be involved after he is at school which is only January for us so not much time to suck the experts dry of what knowledge I can.

Maybe for example tests he should have and may not be automatically offered.  Checks for conditions that go along with Autism?  What might they not do that they should do?

All suggestions gratefully recieved.

WyattsMom's picture

Helmets

Does anyone have information about safety helmets?  I'm not talking about bike helmets.  Do you know if insurance might cover the cost of a helmet?  Do any of your children wear a helmet to protect them from self-injurious behavior?

Cindy's picture

FOCALIN & ORANGE OREOS

Okay the good news is the Focalin XR seems to be helping Marcel calm down (woo hoo), he's on

10 mgs. Im waiting for his new 15 mg script to come in the mail. He burns the 10 mgs in about

three hours. Right now he's getting the ten mgs in the morning along with his anti seizure meds

and then I use Clonidine after the Focalin wears off. The game plan is to watch his weight & if

necessary put him on a little risperdal to help his appetite. Right now he's perfect, not too thin,

not too chubby. The bad news is my husband wasnt thinking when he bought double stuff

Oreos without noticing they have a orange middle for Halloween. ORANGE, & we have WHITE

dining room chairs!! (My brother and sister in law had a beautiful table & chairs made, their

house is south western, and gave us their travertine table with six chairs). I scotch guarded

the chairs kinda sorta with a half empty can we had but STILL, orange Oreo goo & anything

white DO NOT MIX ugh. And of course Marcel noticed them this morning and had to have a few!!

admin's picture

Address in Profile

I am noticing that a lot of people are putting their full address in their profile. I wouldn't recommend this, as there are so many predators and people looking to steal identity, etc. I think safe is better than sorry. I would recommend listing your city and state, or even your street without a house number...but I would avoid listing your full address in your profile. Just a thought....my $.02.

Anonymous's picture

Cooking workshop

Hi, I started this blog for my senior project. Which is going to be a cooking workshop for kids with autism and Asperger Syndrome. I want to know if people who have a child with either of these would take the time to answer some questions. 

  1. Do you think it's a good idea, having the kids cook and learn by using their hands?
  2. Does your child need gloves to touch sticky or gooey stuff?
  3. Would it help for them to each have a partner helping them along?
  4. What would be something’s that would be too overwhelming for the kids? Ex. too many stations, too many people, etc.
  5. Do you think these kids would actually want to do this?
  6. What are going to be something’s I'm going to struggle with?
  7. In genral do you have any tips for me?

Thank you for your time and I will continue to blog as I progress in the planning.

Anonymous's picture

Could you remind me please....

I forget that my son has Autism.  It seems incredible that I could forget.  Our entire lives revolve around therapies, picture schedules, and routines.  I spend endless hours working on learning materials to help him better understand the world.  I even have a website that I use to make those materials available to other parents who have children with Autism.  But, still there are days I totally forget my son has Autism.

It's been a long week here in our house.  My son has been engaging in a lot of repetitive behaviors, hand flapping, lack of eye contact, unwillingness to socialize... yadda yadda...  All the typical "Autism Stuff" that I should recognize.  But, I don't.  My son is so "typical" most days that I forget what the symptoms of his Autism involve.  Even his speech therapist sighed in exasperation a few times before suddenly remembering that "Oh, that's right, these behaviors are consistent with his diagnosis."

Anonymous's picture

Coming to terms with a diagnosis

Hi all.

My son is just about to get diagnosed with Autism at four.  It has taken so long for lots of reasons which I won't bore you all with.

I am sure thought that the experience is much the same for us all.  Feeling that something is not right, but not wanting to believe, and being reassured by so many that he is fine and pushing the worries back in your mind.  Trying to make him interested in this that other much littler kids naturally love.  Like ball sports (Dex will just let the ball hit him in the face and laugh) and of course the not talking... strangers on the street trying to talk to him and getting no response ask what's wrong with him?  Feeling defiant and agnry that there is nothing wrong with your son.  Then trying to justify why he is freakin out from to many experiences- too many people.  Trying to take in good humour that you do discipline your son, that he isn't molly coddled.  You aren't just over protective when you won't let him out of your sight (knowing that he doesn't respond to his name, and won't come back when you call).

Cindy's picture

IM JUST CURIOUS

I have ADHD & have always had a sleeping disorder. My birth mom has narcolepsy & has taken ritalin

over 45 years now just to function without falling asleep. I also have dyslexia. It doesnt effect my

spelling that much BUT I have no sense of direction so I avoid driving and let me tell ya thats a pain

in the butt!! Im just curious how many parents have ADHD, and/ or a sleeping disorder and/ or

dyslexia?

 

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