Autism Diets?

shootingstars's picture

Perhaps because Michael is still at the beginning of his diagnosis I am confused by things, but I have been looking up so many things about Autism. I am finding things about diets for glutin free foods for  Autisitic children. Thus far none of the people who work with Michael, including his doctors have mentioned a special diet for him. I wonder if this is for all children with Autism that such a diet is reccommended or maybe children on specific places on the spectrum. Michael has been tested for Diabetes and Anemia because of a concern with his eating and sleeping, but I was not told to do aything with his diet...

the same thing happened to

jnc772000's picture

the same thing happened to me. i asked about the diet but no doctor wanted to go there with me. the GI doctor we see tested him for food allergies and said he was not allergic. so he said the diet would not be helpful. sometimes i think i should still at least try. but my son does love bread! so i haven't even tried because itoo do not need or want anymore agravation in my life. but as i typed that i felt selfish. i don't know what to do either. and no doctor seems to think i should be doing it.

It is likely that no regular

WyattsMom's picture

It is likely that no regular doctor will go there with you. Most of the doctors who would recommend a gluten free and casein free diet to you are special doctors known as DAN doctors. (I used to think that stood for Defeat Autism Now as is always typed "DAN!" with an exclamation mark, but it stands for Diet and Nutrition). They are usually very expensive. The first step is to get lots of blood work done. That is what is preventing me from going forward with it--well, that and the expense. People assure me that for $100 someone trained and experienced will come to my house and draw my son's blood and mail it off to a lab (lab costs extra, like up to $3,000 extra). I think it would be a traumatic nightmare for my son, but I may still go ahead and do it anyway if I can be assured that the veins in his arm wouldn't get all messed up. After the bloodwork comes back, then the DAN! doctor gives you advice on treatments and supplements based on chemical/toxic excesses and deficitis in your child. That's my understanding. For better info, go to tacanow.org and the socalautismintervention Yahoo group.

There is a group here in

WyattsMom's picture

There is a group here in Southern Cal called TACA tacanow.org that has a lot of info about GFCF diets on their website. It's a great group and they have helped us a lot in the past. We don't do the diet but we know a lot of people who are into it. It is very time consuming to do on the cheap. If you want convenience, you will be paying $8 for a bag of pretzels. There is a Yahoo group that many TACA members are affiliated with called socalautismintervention (or something like that) and their archives are stuffed with info and experiences, especially about diet, supplements, and alternative treatment ideas.

I have an eight (very nearly

Trish's picture

I have an eight (very nearly nine) year old son with autism who only eats crackers, biscuits, cheese and chips. He has been tested repeatedly for anemia and always has been fine. I have no idea how. We have played with the idea of gluten and casein free diets - particularly as i have a very low tolerance to casein. But what would he eat? and would the struggle be worth it. On the other hand I have a daughter (nearly eleven) with Aspergers Syndrome who has type 1 diabetes and a eating disorder. I have tried both casein and gluten free diets with her over the years and they improve both her general health and behaviour. However because of her eating disorder she ended up become so under weight that the doctors became concerned for her health. We tried the diets pre diabetes and I would not put her health at risk by trying them now. Good luck with your decisions.

Hi! Diabetes runs in my

WyattsMom's picture

Hi! Diabetes runs in my extended family and that is exactly why we were wary of the GFCF diet. It has a lot of rice and other high glycemic index foods in it.

My 4 yr old ASD son loves the very same foods as your son! Will your son eat those biscuits from the refrigerated section at the store or do you have to get them from say, KFC every few days? I do that sometimes! Wyatt especially liked grated parmesan but it made him break out in a rash--we think it had to do with cheese mold. The kind of parmesan that you put in a shaker doesn't give him a rash. My son has responded well to lots of foods that can have cheese sprinkled on them, like pastas: spaghetti and mac n' cheese. He really likes McDonalds, so we get him the bacon, egg, and cheese biscuit (no bacon, because he won't eat it) and now he eats the whole thing, even the egg. He will eat the hashbrown but I don't often get them because they just seem SO UNHEALTHY. He has always liked foods on the salty side, so I don't even try to give him sweets anymore (except for graham crackers--does your kiddo like those?). He also likes quesadillas, beans and cheese, chicken strips, fries, and turkey lunch meat. Anyway, your son is almost 9, so you've probably tried out a lot these foods on him. Did he like more foods before and then just "go off" of them? That has happened to us.

I would love to add more

shootingstars's picture

I would love to add more organic foods to our diet, but they are so expensive to buy and have Michael refuse them. He eats really well at school and he has always been big for his age. He is not fat, just ahead on the height and weight. Thank you for your input.