jnc772000's blog

been a while

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sorry it has been so long.

i had been going through about two weeks of torture. ben had a horrible rash on his bum. it took the doc 2 weeks to finally perscribe something to make it go away!

but i have been having more and more problems with him throwing tantrums. i mean screaming. we thought it was because of his diaper rash, but now that it is gone there is no reason. i think his sensory issues and not being able to communicate effectivly is getting to him. i feel for the little guy. i also feel that sometimes i am the only one who understands him. wich is hard because it makes me feel like i should be with him all the time to explain to others what he wants or needs. really i just wish he would take to me. sit down look at me and speak. tell me what the heck he is looking at all the time.

thanks

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thanks for all of the comments. i'm glad you guys understand where i am coming from.  i think i am going to change my dev. pedi. i feel like i have been sugesting  things and then she will think it is a good idea. i mean who is the doc here, me or her. so now i feel like i am starting over. i'm sure there will be a waiting list.

on a good note....ben said bye- bye da today. i was so excited i praised and praised him. but i know not to get my hopes up because he does things like this and then will say nothing for months.  but for a moment i fealt so good. like he is getting better and soon he will be talking my ear off.  someday.........

am i a good person?

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sometimes i hate other kids. i know it sounds bad, but when i hear about what they are saying or doing i get a sick angry feeling inside. i was talking on the phone with my girlfriend and she was telling me what phrases her 18 month old is saying.  and i was like ya that's nice. really i was thinking i hate her! my son is 2 1/2 and has no words. well he does spontaneously say thaings and shocks us all and then the next day nothing! so does this make me a bad person or just a regular mom with a kid with asd? i also this week found myself balling my eyes out as i was looking at ben's baby pictures. he was so happy and now i can't even get him to look at the camera.

also,i am constantly having nightmares and anxiety about getting my daughters mmr shot in a few months. i really don't know what to do. i saw on the new that there was 66 cases of the measle's this year sand i don't want her to get that either! i'm really at a cross road.

never had to blog before

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so i have never had a blog before. but i think maybe this is healthy and refreshing at the same time. i sometimes feel sick when i think about ben's future. ben is my two yearold son, who was diagnosed with autism about 4 months ago. funny now he is getting a lot of services and i have yet to see a real improvement. in fact in some areas i think he is worse. in my mind i thought that once ben started getting treatment he would magicaly start talking and be fine. it wasn't until recently when i started to realize that this was him for the rest of his life. and maybe he won't ever talk to me and maybe he won't ever move out. i laugh because i really thought that he was going to just "poof" be better. but now i am not so sure. i take things day by day and i try not to think about what will happen tomorrow. but i'll tell you one thing i keep repeating to myself is "god will only give you what you can handle".