Devun Hunter's picture

In honor of both of our daughters who are on the spectrum we created Autism Knows Anarchy
(an•ar•chy= confusion; chaos; disorder). This is one of the ways we help spread
awareness with the way families feel when they first have to face Autism. I know
personally when our first daughter Brooklyn was diagnosed we didn’t know what to do to
help her, but we learned quick from reading and different programs in our area. Neila was
born 6yrs later, but we knew what to look for and got her into early intervention. We
also volunteer for F.R.E.E. (family resources and education exchange) and Autism In
Long Beach to help spread awareness.


seebert's picture

That's funny, because the way the autistic mind works is the exact opposite of anarchy- it's rigid authoritarianism.

seebert's picture

It took me a second reading on a different day to get it- yes, to the neurotypicals surrounding an autistic, the authoritarian rules the autistic tries to enforce on the world seem to be totally chaotic and random (especially when the rules are broken and  a meltdown takes place).  But that's only because you have yet to figure out the rules for that particular autistic.

Devun Hunter's picture

I have 2 daughters on the spectrum 3 and 9 of course they have their own way of thinking which the 9yr old we've for the most part we've unlocked her thinking and it's been quite easy atleast until middle school to advocate for her. The expression Autism Knows Anarchy is what the whole family goes through as a whole. Losing family and friends, some lose their spouses. The whole figuring out your child, which I've realized alot of parents don't have the patience they need. My daughters are blessed the come 1st in our lives and we do everything we can to improve their lives.

seebert's picture

I figured it out on the 2nd reading.  I'm a special needs parent myself- and with any disabled child, what is needed first and foremost is patience!

But I'm also a late-in-life Aspie suffering from some PTSD due to bullying; and it is from that standpoint I responded originally.  And it's from that standpoint that I offer the following advice to lower the chaos:

1.  Don't be too sure that your girls' lives *need* improving.  They are as they are meant to be- with their own set of challenges and abilities.

2.  Look for obsessions.  Nobody in this world is happier than an autistic whose routine schedule allows them time to work on their obsessions; if that work also earns a living, nobody is more successful or competant.

3.  Developmental Delay isn't Developmental Statis.  Sure, it may take until they're 30 or 40 before they're ready to be on their own- but that extended childhood just means more parenting fun and love for you.

Devun Hunter's picture

Thanks for the advice. We incourage our 9yr old especially cause she loves science and adventuring. So she has a hugh book collection. Also she has rolly polly village.

seebert's picture

I was reading at 1500wpm by age 9- and just burning through my school library.  In comparison, my son's Cerebral Palsy is right in the language center of his brain and is causing dyslexia- he can't tell a 2 from a 5, or a p,q,d, or b apart (in lowercase of course), and phonics makes no sense to him at all.  He's learning to sight read instead- a long laborious process which is teaching ME patience.