Jenny McCarthy

admin's picture

I just found out today that celebrity Jenny McCarthy has a child with autism. She writes for a site called Indigo Moms. I haven't had a chance to really check it out myself. So I'm not exactly sure how good the information is, but it's another resource.

I don't know how I missed

seebert's picture

I don't know how I missed this but:
The whole Indigo Moms/Crystal Child thing scares me out of my wits. Far too close to scientology, far too much new age crap, far too little science.

horses4autism Whoah, what's

Del Mar horses4autism's picture

horses4autism

Whoah, what's wrong with Scientology in regards to autism? There is quite a breakthrough in Scientology technology regarding autism. The Church itself doesn't have services for autism, but there are Scientologists, such as myself, that have applied some of the basic techniques to autism with very good results. It can be very helpful if one understands the spiritual trauma behind autism in relation to what can be done to disspell it. The difficulty lies in establishing communication which is vital to any form of therapy anywhere. That is where Scientology has an advantage, although most Scientologists do not know that. They express that they had wondered if Scientology could help autism, but the most basic technology is too high of a level for the cognitive aptitude and communication level of most autistic individuals.

For example, kids with autism are calmed by horses and by physiological assistance via horse riding due to the gentle balancing, hip movements, and lack of external perceptions that are often overly stimulating. But there is more to it than that. Kids with autism have a spiritual availability that few humans are able to tap into - or do not know that it's there or that they could tap into them. Animals have this same spiritual availability, horses being one of the more perceptive.

The connection between horse and child with autism, is the same as with other children and animals but on different levels of connection. For example some children are fearful of horses, which simply stems from some past experience or observed incident that implanted the fear. Other children are indifferent to horses and have made strong bonds with perhaps dogs or cats, however, these bonds are often bonded by ownership, self-fulfillment through physical contact such as cuddling and petting (which is also induced in such a person when a stuffed animal with fur that is real or feels real, is on one's lap or on the sofa or bed nearby). Horses do not provide this 'cuddle' effect. These same kids may also be attracted to dogs because they can influence the dog through commands and companionship in play with other kids and such. This is a basic spiritual fulfillment as well - being able to create an effect in another without being overly intimidated by them, and having general interaction without being controlled or judged.

But there is another kind of 'connection' with horse lovers. Kids that perceive the spiritual availability of the horse and visa-verse. Horses are calmed by these children and are intuitive to the child's vulnerability and size.

But the child with autism has an 'extra-sensory availability' which I would only describe as purely spiritual. Being a bit disconnected from the control centers of one's own body and brain (which is really just the message control center between the spirit and the body), the autistic child is left to other devices to get along in this world. Being also a bit disconnected with people - who are not so spiritually available, also leaves one in need of other means of communication and survival in an overwhelming environment.

But the spirit, separate from the brain and body, is trying to connect yet is easily overwhelmed and disoriented by the above factors. The autistic child is exceptionally perceptive to another's purity of flows and level of affinity and potential comunication. He knows when he is being worked on and when he's be rejected. He knows who he likes and who he dislikes. Being emotional is not a requisite to affinity, mutual harmony, or potential communication. Therefore, observe your child around people and see who calms him without effort. See who holds his more positive attention and curiosity by comparison.

You have heard it said, and you may have said yourself, that your dog and your infant or toddler are good judges of people. How true this can be, when they have not been cowed to submission and propitiative behavior ('kiss butt' behavior due to fear and to please one and all).

So this horse connection with the autistic child is a genuine spiritual connection. This connection includes unspoken flows of affinity, agreement, and harmony. It's a quiet music.

So what were we talking about? Oh, Scientology. Well, there are Scientologists who have this 'connection' with kids, animals, and those with autism, and there are those who do not. There are Scientologists who come to have it - most of them, and there are those who have it before they ever begin studying Scientology. Everyone has 'it' inherently, but not all are comparable or know they have it. But Scientology does bring it out and provide an understanding of this phenomenon. It's goodness connecting with goodness...such as parent with autistic child, but with one of them knowing how and persisting until the connection is made. No drugs, no 'working on', no 'treatments or invasive brain or body work' other than one exception... bio-chemical stability is important and that's where Jenny Mc Carthy has paved the way for many.

I know there is a lot of propaganda about Scientology and if I hadn't already known about it before the heavy attacks, I would be suspect too. But then again maybe not, because I am not one to read or believe the gossip about other faiths or individuals who belong to a particular faith. If it's important for me to know, I find out for myself. I judge people by their actions, honesty, and contribution to society. They may or may not follow their religion, but they do have actions. That is why I care about. Are they good people and do they really help? Can I see the help without also harm? It's simple.

I have to agree with the

jaymers's picture

I have to agree with the objective reply on this one. I consider myself an objective realist as well as esoteric person. I do have to mention esoteric because I belive in higher 'forces' than ourselves. However the problem with spirituality is one cannot promote it to be scientifically or clinically proven. Until the 'Scientology' faith can be stated as a scientific studied method, then Ms Mcarthy needs to leave her crystals and magic to her own personal and private use. Let stop promoting the snake oil people

horses4autism There's

Del Mar horses4autism's picture

horses4autism

There's nothing more scientific than proven 'results'. That's why both Scientology and Jenny McCarthy's program are so popular. People try them and prove to themselves that they work. Who knows better than you if something works for you. I don't need a study to tell me, I can hear others success stories and then see for myself.

I don't know anything about crystals, that isn't part of Scientology that I know of. Also, I've never heard that Jenny McCarthy is a Scientologist either. I just recommend her only because so many parents have followed her protocol and I have seen the positive changes in their child.

It's the communication drills and Dianetics: Modern Science of Mental Health that has helped me to make measurable change with autism and these are two of the reasons Scientology is so popular, no matter what the pharmeceutically suported media wants you to believe. It's growing because it works.

I guess I would have to

jaymers's picture

I guess I would have to agree with you on the fact that one thing may work for one child as opposed to another. It is a personal and private decision that may work for your child. However with that being said doesn't necessarily mean it would work for another, this is why all of these spiritual slash biomedical stuff is considered 'controversial'. It is considered this way because the majority of outcomes is in fact inconclusive to deem worthy of accurate results. One cannot suggest something for autism that is necessarily going to create the same result for the other. This is why this disorder is so complex. One cannot even find the exact catalyst of the cause let alone the 'cure'.

You know I'm not really sure

John H.'s picture

You know I'm not really sure why we are still talking about this person.......she closed her school, has said that her son has Landau/Klempner, I haven't seen her invovled in Generation Rescue, I guess she is still invovled in the anti vaccine thing but with the whooping cough outbreak I don't think they should be talking about not vaccinating kids anytime soon. So again.....why is this person relevant in our world again?

horses4autism Whooping

Del Mar horses4autism's picture

horses4autism
Whooping cough? That's a media gag to sell vaccines. I'm around an awful lot of people and haven't seen a single case. And if I caught it myself, I personally would handle it with lots of vitamin C because that I know for a fact - from my own experience that is works. Plus, my son has never had a single vaccine and has never gotten sick other than a few light sore throats.

But yes, every person has to decide for him or herself and this is one place they come to find out other's experiences and opinions, and we're all glad to share ours.

Nice....I'm sure these

John H.'s picture

Nice....I'm sure these parents feel that its a "media gag" or because the story mentions that they are Latino that this doesn't even count right?

SAN FRANCISCO — After the deaths of five infants, California health authorities declared an epidemic of whooping cough in the state on Wednesday, urging residents — particularly those of Latino background — to get vaccinated against the disease.

horses4autism Oh save us

Del Mar horses4autism's picture

horses4autism

Oh save us Lord. I see this as ethnic cleansing which is the goal of psychiatry if you read their own writings (can be found at cchr dog org). You know, what better way to get rid of a race that another race claims to be inferior, than to kill it off with a debilitating vaccine, or a sterilizationalized food such as that from Monsanto (per recent study results found), or via brain destroying psychotropic drugs to 'treat the autism, or whatever the vaccine caused in the first place'. Isn't it fitting that this problem is in the Latino community. How convenient that is. And thanks again to psychiatry who destroyed our excellent educational system back in the 50s, this population is not literate enough to study up on these things to even try to defend themselves from it. People ! Study the entire web site of Citizens Commission on Human Rights ! http://cchr.org

Find out the full documented truth yourself and help clean this planet up from harmful psychiatric practices.

John do you mind explaining

jaymers's picture

John do you mind explaining what Landau/Klempner is? I tried googling it but it ended up being in German hehe (I dont speak or read German)

Sorry I should not type when

John H.'s picture

Sorry I should not type when I am so tired at night, I spelled it wrong (landau/kleffner), here is some info from Wikipedia and another site I found.

From Wikipedia:
It is characterized by the sudden or gradual development of aphasia (the inability to understand or express language) and an abnormal electroencephalogram (EEG).[3] LKS affects the parts of the brain that control comprehension and speech (Broca's area and Wernicke's area). The disorder usually occurs in children between the ages of 5 and 7 years. Typically, children with LKS develop normally but then lose their language skills. While many of the affected individuals have clinical seizures, some only have electrographic seizures, including electrographic status epilepticus of sleep (ESES).

From Autism-world.com
The following are the most common indicators of Landau-Kleffner syndrome. However, each individual may experience symptoms differently.

Early signs may be referred to as auditory agnosia, which includes the child:
suddenly having problems understanding what is said.
appearing to have problems with hearing – deafness may be suspected.
appearing to be autistic or developmentally delayed.
Spoken language is eventually affected, which may lead to complete loss of the ability to speak.
Some children develop their own method of communicating, such as with gestures or signs.
Approximately 80 percent of children with Landau-Kleffner syndrome have a history of one or more epileptic seizures that usually occur at night.

All children with Landau-Kleffner syndrome have abnormal electrical brain wave activity on both sides of the brain.

Hearing and intelligence usually are confirmed to be normal in children with Landau-Kleffner syndrome. However, the disorder may be accompanied by behavior or psychological problems such as:

hyperactivity
aggressiveness
depression
The symptoms of Landau-Kleffner syndrome may resemble other conditions or medical problems, such as deafness or learning disabilities. Always consult your physician for a diagnosis.

I was curious when you said

jaymers's picture

I was curious when you said her son had Landau-Kleffner syndrome because when I read her book I was kind of leery on the fact that her son actually had autism, because she mentions that the psychiatrist just looked at her son and diagnosed him. She never mentions that he did any of the standard battery of tests determining an exact diagnosis.

Any truly objective person

seebert's picture

Any truly objective person who has done the RESEARCH knows that Scientology is a religion invented by a science fiction writer to bilk people out of as much money as possible. That is not gossip. That is DOCUMENTED FACT, from multiple sources:
http://www.don-lindsay-archive.org/scientology/start.a.religion.html

EVERYTHING ELSE is just non-scientific claptrap, and I see no reason to put faith in any of it. Especially not the foolish stories of Xeno, Indigo Children, or Crystal Children.

horses4autism I haven't seen

Del Mar horses4autism's picture

horses4autism

I haven't seen any of these things in Scientology. And if I had, I wouldn't think it's any more of a faith-based foundation than any other religion. No religion is without it's miracles and history of super natural entities and stories. Scientology is another religion and has become very popular because of the practical tools we learn to use in life to help and be helped. It doesn't have to be proved to you. Anyone who wants to know if it will help with communication with a non verbal child can get trained in the communication tech and then Dianetics: The Modern Science of Mental Health. The tech was written at the average to above average literacy level so I have personally adapted my program to apply the techniques at a much lower level to help the non-verbal child and overly stressed parent as well. I enjoy the autism blog very much.

It might be because science

seebert's picture

It might be because science fiction is one of my autistic obsessions; I'm quite familiar with the genre and a huge body of literature. Plus I have an eidetic memory for story lines and plot lines. It is quite obvious to me that all of the Scientology literature I've read is lifted directly from L. Ron Hubbard's early short stories, with only minor name changes. It is pretty hard to ignore when the "science" in Dianetics is just a pop-science rehashed version of Freudian Psychology that he also used for the theology in Orange Catholic in Dune long before the "church" was started.

I also do not consider the tech to be written at "average to above average" literacy level- it's more 4th grade literacy level, very readable. The Old Man was a great science fiction writer, one of the best; but a professional liar is still a liar; and when it comes to faith and miracles one must consider the credibility of the source.

OTOH- Dianetics and ABA therapy do share a common root- Freudian psychology. But the difference is- one is designed to actually help the child learn coping skills, and has hundreds of independent scientific studies behind it. The other, unfortunately, is designed primarily to create "the poor man's psychoanalysis"; there are those who believe this means that if you're not poor when you start, you will be by the time you're done.

http://www.straightdope.com/columns/read/1012/whats-up-with-dianetics-sc...

And speaking of knowing your sources: Cecil Adams is a professional newspaper SKEPTIC. Which means he seeks truth, no matter where it leads.

You are completely accurate.

jaymers's picture

You are completely accurate. I have studied psychology as well as religious philosophy. There is no doubt that Freudian psychology has a play in this. C.G Jung, the understudy of Freud, explained this more in his abstracts by the religious primitive unconscious of the mind through the Psychology of the Unconscious. Dianetics played an immense contribution to the unconscious study of the human capacity, the symbolic mind. In the end the human mind hasn't changed much, for it is always driven to the paradigm of religious symbolism, and Scientology plays off that a great deal.

horses4autism I just follow

Del Mar horses4autism's picture

horses4autism

I just follow the pack to see what's so exciting and have enough ability to observe for myself as do most people. I suppose that's why the Church continues to grow despite posts like these and mass media telling lies about it. People want to find out for themselves and are doing just that. These attacks on Scientology are in effort to distract from the exposure of psychiatric crimes and horrors documented at cchr.org web site, where the horrendous side effects of the drugs given to children can also be found.

Whatever one's personal

jaymers's picture

Whatever one's personal views about spirituality and religion are, it is always imperative that each individual obtains the right and the freedom to practice whatever they wish. I agree with you that you should practice your freedom of religion. (aside from obvious criminal reasons like harming another individual in the process i.e. human sacrifice, violence, or sexual assault)

I do however disagree with the notion that a child will remain to die of a disease that he or she carries when the medical community has a cure for. (i.e cancer) To deny a child the right to be treated is wrong in my opinion. This is where the concept of freedom of religion and the freedom of the individual to make medical decisions becomes gray. This is where is gets controversial.

Oh...it really so said this

johntim02's picture

Oh...it really so said this disease is so bad.....I have been reading this lot in various website.....

Thanks
onketing

I have been promoting

jaymers's picture

I have been promoting ThreeLac on this site,and been giving it to my son for two years. HOWEVER I just read a couple of articles out there that there is a strain of bacteria in threeLac that can be dangerous! It is the enterococcus faecalis, which is only found in this probiotic. The Australian Health Department baned it in their country. This type of bacteria can be found in some sick hospitals. Studies are showing that this bacteria can make a person resistent to antibiotics as well. I will post the full article, and please if you know any information on this, please feel free to share it with me thank you. I started my son on Yukcult drink

http://www.yeastinfectionadvisor.com/threelacreview.html

I am into biomedical world,

jaymers's picture

I am into biomedical world, I have heard many good things about this. GFCF didnt work tried forever. I have been using oral chelation and clay bath since it is a cheaper way to use it. However I have been on the MB12 (methyl-B12) for around off and on almost two years now. Initially I had to pay 750 dollars for the evaluation of the DAN! Dr. then 60 bucks a month for the injections. And one follow up for 200. Now hes refusing to renew the B12 injections for me unless I make a evaluation appointment every year! thats 750 a year! Im concerned that I smell a scam. However I have seen little improvement in my son, but still have noticed! I feel awful that I cant afford 750, since I hear people drop thousands at a time. I live in a middle class home, but have four other mouths to feed. Do you think he is scamming me? or is this protocol for Mb12 injections

horses4autism I've never

Del Mar horses4autism's picture

horses4autism

I've never heard of it costing that much money but being high-end doesn't necessarily mean 'scam' in my opinion; just high end. If it's helped, you may be able to get trained and licensed to give the injections yourself? Might bbe able to find out on the net.

No you can be correct in

jaymers's picture

No you can be correct in this. Im just trying to say that people should take everything like a grain of salt.

But if you look at this objectively 'high end' shouldn't be 'high end' if it is necessary for the progressive function of humanity. It should be affordable and should be covered in hospital protocol and via insurance. Its not. Why is that? I can tell you why, because it works for one child, but doesnt work for another. This is so because the treatments hasnt raised accurate enough data to be a certain type of medical therapeutic protocol. Now I say take like a grain of salt because I know that insurance companies and issued policies are a broken system in itself. But truly speaking, if something is supposed to be a done deal why are there so many autistic people still experiencing their 'symptoms'? Has the data been collected on these people who have 'been cured'? Or are their mothers collecting their own data? If mothers are collecting data are they looking at it truly objectively? How could they when they are default subjective since it is their own son or daughter that they are collecting data for?

I mention this becuase I have personally experience the lack of objectivity in a parent before. I knew this woman who had a 4 year old autistic son. She claimed her son was on the GFCF diet and since he has been on it it was 'like night and day'. I did not say anything to this woman but I listened to her closely and studied her. She claimed her son was 'like night and day' but he still was non-verbal, had extreme oral stimulation issues, and was experiencing aggressive behaviors. Now if her son was cured through this specific diet, how is her son experiencing 'night and day' results? Do you think this woman was truly objective in her data? Or is this the psychological concept of the 'dumbo and the feather' theory?

All Im trying to say to parents is this: Keep positive, never give up, never loose faith, BUT stay objective, and know that there isnt conclusive concrete 'cure' yet for autism, so when you go looking for biomedical treatments take them like a grain of salt, don't be disappointed if it doesn't work, and please don't loose your house over them, stay realistic. The treatments are considered 'controversial' because there isn't a sure cut treatment that works for the global population that has autism. What I have learned from quitting biomedical treatments is this: My son is who he is no matter what, instead of trying to find this magical potion to get him to enter my world, I have decided to enter his. To love him for who he is and STOP trying to 'cure' him. Life is so much liberating now, and HE IS improved in different ways.

Jaymers...Thank you I have

John H.'s picture

Jaymers...Thank you I have been trying to convy this for the past couple of days and I just could not put it out there as well as you just did, I am for anything that helps our kids and keeps them as happy as they can be whether it be GFCF/Holistic/or conventional, I like you have had experiances with people like you descibe I can remember a period when we went thru Secretin injections because it was the latest "night and day" remedy, and for some folks it did some good but not us so we have tried other things over Derek's almost 20 years and finally found a balance that moved him forward and made him happy.

I also like Jon Gilbert take more offense that someone comes out and wants to speak for me or push an agenda that while helps some alienates others I just want to answer questions...share experiances and live life and if something that we did with Derek helps another person with Autism then that is Derek's legacy.

Again thanks for putting this out there hopefully the it will be received well....but some folks just so focused on being right that they can't see the forrest thru the trees.

my experience is if you

channa13's picture

my experience is if you smell a scam it usually is. I have gone thru many docters with my son and MY experience is most the ones i have been to are more interested in money then actually helping. thats just MY personal experience. so I have been studying and researching on my own everything that has to do with autism, digestive disorders and everything related.In the end I still work with docters but dont feel they know that much more then I do (again my experience)..autism and all the related health issues is so new to medicine that nobody does know all the answers its about trial and error find as much info that you can on your own learn what you can from everyone and make your own decisions.

We would go docor shopping

John H.'s picture

We would go docor shopping and would not hide the fact...when we moved to Oregon we were all told about a certain hospital that was the "best" for us and we made an appointment with the person that was recommended to us by ourselves without our son and just talked to the man...and it was like we were from another planet and had a very "how dare you doubt me" attitude....and that was the last time we saw him. We went to a couple of more and it was kind of the same as your experiance but then we stopped by a guy in our neighborhood and he sat down and talked to us like people and after about 10 minutes said now tell me about your son, so we started talking about behaviors and delays and......he stopped us and said no tell me about your son.....tell me what he likes and doesn't like, he wanted to get t know my son as a person and we still go back there to get blood work done and he is almost 20. He walks in there and everybody in the office says hello to him by name ...great guy, great doctor, great office.

you hit it dead on. Kuddos

jaymers's picture

you hit it dead on. Kuddos

I am going through similar

KaeLainne's picture

I am going through similar myself. At first, I was so in LOVE with DAN! and our DAN! doctor... then I seriously started to realize that the questions I asked, she often had to look up the answer... I can do that, why am I paying $125 a visit to look shit up? She stopped returning my emails when my questions got more in depth.. While I still feel she is an amazing woman, I just feel that the answers we seek are NOT only available at a DAN! doctor's office. I have learned SO much more through talking to others parents like me and then researching what they have done.
We were blessed that the gf/cf diet DID work for my daughter. She has had one dose of Mb-12 at the DAN! but that's it.. I did pay $125 for 5 other supplements though... horrific tasting powdered capsules that I can't get her to ingest... pretty much a waste of money, you'd THINK, being a DAN! and working with children with sensory issues... to have maybe the liquid form to recommend and sell (there are many in liquid)...
I'm rambling.. I feel guilty leaving our DAN!, yet also feel like I have wasted money..

horses4autism If your

Del Mar horses4autism's picture

horses4autism

If your powdered pills are the same as mine, (big green ones?) then they are excellent. I crush them and put them in concentrated orange or berry juice (frozen concentrate with not much water to dilute it). The orange and berry are both strong enough to cover the strong vitamin taste for most kids with sensory issues, if they are okay with the juices to begin with.

True, DAN docs are limited in their knowledge, but I've found that when they do look up information they know how to find what really works rather than what just treats symptoms or will be toxic and cause side effects. I trust their research, and mine too. Parents who like to research get down to the nitty-gritty more than any practitioner other than those who have a child with autism themselves perhaps and research well in all directions.

Rakesh Patel, R.Ph. MBA We

Pharmacist-WELLHealth Rx's picture

Rakesh Patel, R.Ph. MBA

We work with several DAN Dr.s at our Pharmacy. We dont recommend one over another, but will be happy to give you a list. Call me at the pharamcy or send me an e-mail. The address is: www.wellhealthrx.com

Not all DAN! Doctors are

Ozma's picture

Not all DAN! Doctors are created equal- but actually I would be impressed with a doctor with the humility to look things up in your presence- they all look stuff up, most docs just hide it from you to appear omniscient. The best advice I can give is to shell out for the best- we took our daughter to Doctor Bradstreet, in Florida ( we live in Ohio). He is expensive, but he knows his stuff. We are not wealthy, we live in a tiny shoebox house in a rural area. But it was worth every dime. Our daughter is doing so well, no one knows she is autistic! Many relatives have decided this autism thing was just something I was being hysterical about. She is taking three languages at school this year, French, latin, and Chinese, to use her savant skills to their best advantage. Keep your heads up peeps, there is light at the end of the tunnel. My daughter is 16 and the future is as bright as our faith.
gfcf recipes @ http://wogglebug.com

How old is your son? Can he

cunning29's picture

How old is your son? Can he swallow pills? Methyl cobalamin is available without a prescription or doctor being involved. Last I knew, it was available from swansonvitamins.com and was very reasonably priced, although I forget offhand how much it was. Yes, I'd say you may very well be being scammed.

Rakesh Patel, R.Ph. MBA You

Pharmacist-WELLHealth Rx's picture

Rakesh Patel, R.Ph. MBA
You are correct, Methylcobalamin (Methy B-12) can be found in a tablet. However, bioavailably is very, very, very low (my guess is less than 1%). Please remember just because a vitamin manufacture places an ingredient into a tablet, does not mean it will work. The only way to “get” some vitamins is by injection. Methy B-12 is one of these.
On a side note, if you can find a vitamin with L-methlyfolate this will be absorbed better. But still not 100% in my opinion. A RX only vitamin called Cerefolin contains this ingredient. Call our Pharamcy if you have any more questions about Methy B-12. The contact number can be found on our web site: www.wellhealthrx.com

Dose the clay baths and oral

Marlin's picture

Dose the clay baths and oral chelation work? Also, instead of B vitamin injections can one use a reputable high quality B tablet or nose gel?

For my son I have seen minor

jaymers's picture

For my son I have seen minor improvement over the months. the b12 has to be injected in the subcutaneous tissue for it to be effective. Trust me it took months for me to be brave to use a shot, but the shot is small as a diabetic needle, and you can purchase the numbing cream to put on the area where you are going to inject the b12, my son doesnt even feel it.

this site tells you how to use b12
http://www.youtube.com/watch?v=wdIWkym4dAA&feature=related

www.tacanow.org and click on the menthyl b12 area under biomedical treatments, and there is a plethora information there regarding b12.

Thank you for sharing the

Marlin's picture

Thank you for sharing the helpful information, there are so many miracle claimed treatments out there one has to be careful in what they choose to give their child.

Marlin Goff

I agree it can be tricky.

jaymers's picture

I agree it can be tricky. And its hard to say but I think sometimes some of them are scams. Its like finding a needle in a haystack on which one to choose

I have to add on a side note

jaymers's picture

I have to add on a side note of my previous blog, that even though I disagree with some of the approaches that Jenny Mcarthy implies in her books ie "autism is curable" "you should fork over thousands for biomedical treatments" I do think she should be praised in her efforts to bring attention about this particular disorder. By using her semi-celebrity status, I think she brought more awareness to others in our community about autism.

I agree with you about

ChunWong's picture

I agree with you about praising her efforts. The rest of us can try our hardest to raise autism awareness but it's nothing compared to what a celebrity can do by going on chat shows, writing books and being able to publicize them effectively, doing interviews and getting out there and being heard by a worldwide audience. I'm not saying that we shouldn't try, I'm just saying that I applaud Jenny for her efforts.

***** http://www.newautismcure.com/blog - Biomedical answers to Autism *****

I think she is really

Ozma's picture

I think she is really brave. She could have hushed it all up, she had written books on parenting for pete's sake, and it could have all blown up in her face. Lots of people criticize her, but not me. I never judge moms of autistic kids, really. Everyone is doing the best they can, every day. Thank goodness for people like Jenny, who are willing to lay it all on the line for others.
gfcf recipes @ http://wogglebug.com

I guess my only concern is

Jon the Storyteller's picture

I guess my only concern is that she professes to be the advocate and voice for all parents of children living with autism. On CBS' "The Early Show" a couple weeks ago, she said she's "advocating for all parents" and to me, that's a bit self-righteous. Not all share her beliefs and not all believe her son is cured. I have no problem with putting autism in the forefront, but to express "cures" is dangerous, even when you disclaim that they "may not work for everyone". For many unfortunately, her celeb-status alone makes her credible. I'm not trying to downplay the importance of awareness, but the information being professed should be carefully tempered when dealing with a frustrated and sometimes desperate audience.

Jon Gilbert
Co-Chair
Exceptional Parents of Exceptional Children

http://thesamechild.blogspot.com

You have his the marker on

jaymers's picture

You have his the marker on this one Jon Gilbert. Completely agreed

I agree Ozma and I don't

ChunWong's picture

I agree Ozma and I don't understand how people can be so nasty about her. I know that many don't agree with her opinions about autism and vaccinations etc. but people get so personal and attacking about her and there's just no need for it. As you say, she could have hushed it all up, kept her privacy (and no-one would have blamed her) but she used her experience to teach others and raise awareness.

***** http://www.newautismcure.com/blog - Biomedical answers to Autism *****

I tried to contact three

abbylovestwins's picture

I tried to contact three different rescue angels from Jenny's Generation Rescue Site...I emailed three different women and not one of them emailed me or called me back. It has now been over a month, so I am not to thrilled with a resource she offers on her site that does not pan out. Maybe I should try one more time to contact one, but usually in my book, three strikes and you are out. I will have to see if I think it's worth it to try try again.

I am a Rescue Angel on the

KaeLainne's picture

I am a Rescue Angel on the site. My DAN! recommended I sign up, as there were NONE in my area. I have been told that some Angels ignore their requests and that REALLY bothers me. One, it's negative reflection on the site. Two- if these people signed up, they need to step up and answer the emails. I answer mine the DAY I get them. But then again, I literally live and breathe Autism and Biomedical.
It's unfortunate that the treatments don't work for all of our children. It's like anything else- One size does not fit all. There is no right answer, when each of our children are so very different. I just encourage parents to read up on current treatments and talk with other parents and see if they can find something that seems to fit for their family. We have been VERY fortunate and the gluten free diet was a life saver for us. Removing casein had little effect on her developmentally, but physically, the change was dramatic. The dark circle vanished and her swollen belly eased and her stool FINALLY firmed up. This was a chronic issue for her.
The greatest thing for us was Antioxidants. On day two of that supplement, she potty trained herself. The days I cant sneak that one in now are not good days...
I am very sorry you had, not one, BUT TWO bad experiences with Rescue Angels Abbylovestwins. I would be MORE than happy to talk with you. As a rescue angel or just mom to mom. This goes for anyone on here. I'll never push anything on anyone, just help you find info you may be looking for!
As for Jenny- while I may not agree with everything she says, it IS because if her that I didn't listen when our doctor said "Your daughter has Autism. Mourn the loss of your hopes and dreams, there is NOTHING YOU CAN DO FOR HER". (word for word). Jenny was on Oprah days later and I found Biomed. My daughter entirely non-verbal and began speaking within days of removing gluten. For this, I will be eternally grateful to Jenny McCarthy. I have since learned that not only does she not have all the answers. NO ONE DOES and it's up to us to find them for ourselves.

http://biokae.com/home/

That's really bad, perhaps

ChunWong's picture

That's really bad, perhaps your email went into their spam folder or something. I would give them the benefit of the doubt and try again or contact Generation Rescue and explain the situation.

***** http://www.newautismcure.com/blog - Biomedical answers to Autism *****

Being at a place in my life

Ozma's picture

Being at a place in my life where the worst days of autism are behind me, and having had lot and lots of success with the diet and DAN! treatments, I am always willing to help a desperate mom who needs help. I am not a doctor, but have been in the trenches for 15 years. Drop me a note if you need some help, and if I have answers, I would be happy to share. Keep your chin up! And for all the peeps who say that DAN treatments are too expensive, well, so are soccer, piano lessons and designer sneakers. We just choose to spend our meager funds on what will most benefit our child. Not every one can afford it, but there is a lot you can do. And as For the gluten free caesein free diet being expensive, I find it to be much less expensive than the hospital, the psychologist, and the special tutoring she needed before. I would much rather spend my meager money at the grocery store buying healthy food, than spending it on asthma equipment and therapy that goes no where. Give the diet a good solid try- it really does work for a lot of people!
gfcf recipes @ http://wogglebug.com

First, I commend you for

jaymers's picture

First,
I commend you for being positive and encouraging. But your justification for the treatments from the DAN Dr is a far cry from a small soccer fee. And yes in the long run the GFCF diet could help on dr fees, but for me my son became really really ill, and this is not me just giving up cause I tried it several times in his five years of life. By the way, I tracked my cost of GFCF food (i went to all the stores bought books, ordered online food, my son is REAL picky about food ) and my cost with just GFCF food for one son was 135 for two weeks of food! This is not including the food for my other three children. We are talking thousands here not hundreds for DAN dr examination fees and testing, and not including the treatments. It just urks me that these Drs are charging so much money for this! Im sorry but I dont have thousands of dollors in my pocket people!

Heres an example of a DAN drs exploit. I paid 750 to see him for the first time to get B12. I couldnt afford to do the whole testing (whole comprehensive testing is about 3 grand), so I decided to do the B12 for now. He said no problem just pay 700 and 50 something a month to a lab and thats all you have to pay. So i was like ok that fine. Then he calls me up and demands me to fork over thousands for testing (this is not including the treatment costs by the way) and if i dont he will stop me from getting the B12 for my son! I begged him to wait so thats where it is now. Later on down the line I might get a basic test.. (urine, stool) to see how many metals are in my sons system. Thats a few hundred. I can do that, that is workable..

Im just trying to throw out there to not beat yourself up if you dont have thousands on hand. Do it a little at a time, as much as you mom and dads can.
Another Bio-medical treatment I am hearing about from this guy on YouTube called PhilCommander2. (by the way he is real good subscribe to him!) is the Glutothine IV. I called my DAN! Dr. and they said its only 65 dollars a treatment! It helps improve the cellular level (like repairing)

It can be very expensive,

Ozma's picture

It can be very expensive, yes, but we are taking the long view. We actually took out a second mortgage on our house to cover her treatment. We went with Dr. Bradstreet, who is the best there is. I think the docs get pushy sometimes, because they know how much these things are going to help out. I am not sure how old your child is, and where you are on this path, but for some perspective, my daughter who is 16 recently won prizes in the state science fair, and got asked out to prom, and went independently! To put it into perspective, she used to spend most of her time under a table screaming. The DAN! and the diet are worth the time effort and money. At least they were for us. We have used the B12 and the glutithione, they both worked very well, we saw lots of improvements.
gfcf recipes @ http://wogglebug.com

Ozma, it's fantastic that

ChunWong's picture

Ozma, it's fantastic that you have seen such improvements with your daughter - what a great story and so encouraging for others!

***** http://www.newautismcure.com/blog - Biomedical answers to Autism *****