May Update

mamakatof3's picture

I need to use this more often.  I fear I am venting too much on FB.  We have had a lot of good news lately, but still mixed with burnout.  I was sick for about 3 weeks, and not only do you deal with yourself not feeling well, but your highly sensitive kid picks up on it and gets out of sync, you're too tired & sick to do the things necessary to help him, and life gets a bit chaotic and overwhelming for a little while.  I think I'm beginning to catch up after folding about 10 loads of laundry this morning, and catching up on some much-needed sleep.

LJ just started social skills group this week.  It seems as if this could be really good.  If indeed he has Aspergers (he gets a psych eval in June), then this is one of things that should help him a lot.  He really, really struggles in groups.  The sensory system is on overload, and he completely withdraws 9/10 or gets over-excited the other times and does his white boy dance way past the funny point to the quirky/weird point.  I LOVE the therapy group we started with about a month ago - they do his OT and his social skills, and he's getting a speech eval in about a week.  The speech eval is more for his communication/language development because he can talk a lot.  But there are these moments, and I know many of you know what I'm talking about, when you are talking to them and looking at them going, "they're not getting it", and they should.  And I totally having this sinking feeling in my stomach every time it happens.  Or maybe they're getting it later, but you can tell they have "brain freeze" and the cells are not connecting, their mind is confused, and they are really struggling.  It breaks my heart.  I have no idea if ST will help or not -- they'll have to tell me what they actually do to help with those kinds of things.  And I look forward to the psych eval, because they can help us decide what therapy is and isn't necessary for him.  They are pediatric developmental & behavioral psychiatrists.  Being a psych major myself and having heard good things about the group, I hope they will be able to guide us and pin some things down.  I have also heard TEACCH is the best, so I'm indecisive about whether to have him evaluated by them also.  A whole other set of hoops to jump through even though it's free.  Do I do it?  Does it make things more confusing?  We'll see.  June will be a crazy month for us.

 I really am going to start using this more.  :)  Hopefully it will keep me more on track.


Hi there! I so know what

abbylovestwins's picture

Hi there! I so know what you mean about how out of synch things get when Mom is sick. I have been sick for a few weeks myself, and the whole house feeds off it. I hope you are feeling better and catching up on things around your house. I know coming here to vent and learn helps me a lot. I so appreciate this site. I am learning new things all the time and have found a real sense of support here. Thanks for your post, it reminds me that I am not the only one overwelmed, sick and tired. We can do it! I come here for encouragement and find it in neat people just like you! Be well, and take care of yourself!

Thanks so much! I hope you

mamakatof3's picture

Thanks so much! I hope you get to feeling better! Everything is SOOOOO overwhelming to me when I'm sick. I think I forgot to mention that I also have 2 other children younger than LJ (who doesn't turn four till Aug), and between LJ, keeping JD fed (he has low human growth hormone - HGH that I have to make sure he's eating enough for his next checkup), and nursing a baby several times a day (and with taking all the decongestants that dry you up, making sure you're drinking fluids to keep myself hydrated for her), there are days I wonder if I have a brain cell left! :) When you can't shake being sick, you almost forget what it feels like to feel normal. But being on the other side, I'll help remind you -- the energy does come back! :)