I'll be honest. I decided to join Autism Blogger mostly out of desperation. I've been struggling mightily with issues related to my 9-year-old son Owen's autism. I'm a full-time mental health counselor/social worker, so I know all of the "textbook" methods I could use to relieve my stress. I do use a lot of them. But I often feel alone in my struggle. I have a lot of good friends, but none of them have any kids with autism or anything that remotely resembles autism. Along with working F/T and trying to be a good mom, I'm a P/T college student. My driving motivation for going back to school (which I've been doing for the last 2 years already) is to make a career change to a much more lucrative field, and the main reason I feel compelled to do something that will be more profitable is that I worry a lot about having money to provide for Owen's needs when he is an adult. I know from my 14 years of non-profit social service experience that I don't want to have to rely solely on "the system" to support my son financially. I don't want him to have to just "get by" with whatever funding scraps the government is willing to toss his way. I also want to start earning enough money within the next 5 years to start setting money aside for my other son's college fund. He's almost 11 already, and we haven't saved a dime for his education. He is an academically gifted kid who dreams of going to a particular out-of-state university, and I want to help him make that dream come true. And since my husband and I barely get by financially right now, I also believe that a lot of my overall stress would be alleviated if I were earning a decent salary.
So I work hard getting through my classes, and as I plug away at my schoolwork, I also try to be a good mom to my boys. But it is such a battle for me sometimes. My older son has been suffering from some intense anxiety recently, and I know that a lot of his stress is related to his brother's autism-related behaviors. Meanwhile, Owen's behaviors sometimes have placed our family at risk and under scrutiny. The other night, for his own safety, my husband and I had to restrain Owen in our driveway when he was having a severely aggressive tantrum. Some of our neighbors witnessed this, and someone called the police to report that we were hitting our child. It was pretty unnerving when an officer showed up at our house shortly after we had finally gotten Owen into the house and he had settled down. My husband and I both used to work for a child-welfare agency, and we've both had extensive training in nationally-approved child restraint techniques. We would never intentionally hurt either of our kids, and in fact, we both put our own bodies in harm's way at times (Owen has left more bite-bruises on my arms than I could count) to protect Owen from hurting himself or someone else. It breaks my heart and scares the crap out of me to think that the criminal justice system could get involved and the state child welfare agency could start breathing down our necks simply because we love Owen enough to restrain him. Fortunately, the officer who visited our house the other night actually believed our story and didn't pursue the matter any further.
All of the issues I've mentioned so far also cause stress within my marriage. So I often feel as if I'm at my wit's end. I didn't think I really had time to participate in a support group of any kind, but now I know that I desperately need to be part of a caring community of people who understand some of what I'm going through. I definitely don't have time for in-person support group meetings. I've investigated other online autism support groups, and so far this one seems like the best. I hope that as time goes by, I'll have something to offer the rest of you and I won't just be crying HELP!



I understand the worries
I understand the worries concerning the long term financial well being of your autistic child. I'm currently trying to plan for my son's financial needs. There is a desperate, isolated feeling that comes with being the parent of a special needs child that isn't easily remedied with conventional methods and I applaud you for makin the effort to reach out.
Http://FreePrintableFun.Org
Free Printable Activities for Children with Autism
Yes, Welcome! My husband
Yes, Welcome! My husband and I asked our ABA vendor to provide us with some restraint training. They liked the idea so much that they are going to offer the training to other parents, too. It's really odd that parents don't typically get that kind of training. Anyway, I hear you regarding the stares from the general public. I am constantly self-conscious about the fact that my son's behavior is disruptive and atypical. I get the feeling that if it weren't for ADA people would throw rotten fruit at us and try to get us relocate.
Yes, as if it isn't already
Yes, as if it isn't already stressful enough, just having to worry about whether a family outing will be calm or tantrum-filled...and while I don't like feeling judged by the public for our boy's behavior (and our response to it), I feel even worse about how both of my sons must feel when everyone seems to be staring at us (even when our neighbors don't call the police on us!). I know that my older son, the one without autism, feels horribly embarrassed--because he always says how humiliated he feels when one of Owen's tantrum episodes happens in a public setting. But even though Owen can't verbalize his feelings like that, I strongly believe that he still feels terrible after a public episode. His usually exuberant mood always seems so somber afterwards.
We've had a couple of major
We've had a couple of major problems in public. I got after a woman in Walmart one time for staring
at Marcel & giving me THAT LOOK, like he was a brat. I educated her in my loud mommy voice so
everybody near could hear that my son has autism and isnt being a brat. She said "I wasnt staring"
and I said "Oh yes you were." I embarressed the **** out of her. Trust me she will never forget
this mommy lol.
Hi there, Welcome to the nut
Hi there, Welcome to the nut house lol, I mean AB=)~~~ Im in Tx. We moved here from
Southern California four years ago. My son bites too and he scratches AND he will split
so we have to be overly cautious. It is very stressful. I stumbled accross this site awhile back
& feel very comfortable. Fair warning I tend to be a bit of a smart alleck. Im silly, opinionated
and tea makes me pee too much Perseverence so this mommy drinks coffee lol. Seriously
welcome, we're a fun bunch. Glad you found us =)
Thank you, Cindy, for your
Thank you, Cindy, for your welcoming words. I can be quite a smart aleck, myself, although at times lately I have had some trouble summoning up any kind of humor, let alone smart alecky stuff. I also love my coffee--the Starbucks I brew for myself at home every morning is one of my favorite little luxuries in life.
"Hug...kiss...kiss...and a hug." --My son Owen's signature method of showing affection
Having a good sense of humor
Having a good sense of humor helps me cope. It even helped me at my moms funeral when
somebody knocked the coffin into a church pew. I could just see my mom sayin "hey watch
it will ya?" Truth is Im a worry wart but the good thing is I cant seem to grow up lol. Im 46
and I dont act my age. I hope I never get too old to appreciate a good fart joke lol=)~~~
Coffee's OK by me too.
Coffee's OK by me too. Actually, my son keeps trying to get me to drink plain water - lol. This new gym membership seems to be turning him into a bit of a health nut. Still, he won't give up the pizza. I guess we all "pick our poison", eh?
No more pizza for this mommy
No more pizza for this mommy ugh lol.
Welcome to AB. Wow, it
Welcome to AB. Wow, it sounds like to really keep a full load and then some on your back! It also sounds like you have a lot of skills and knowledge that the rest of us struggling mom's would like to pick your brain about - so pour a cup of tea, pull up a chair, "relax" and join in.
Perz
I appreciate your warm
I appreciate your warm welcome--thanks!
"Hug...kiss...kiss...and a hug." --My son Owen's signature method of showing affection
Oh how sweet =)
Oh how sweet =)
You know how you stumble
You know how you stumble upon something and you often wonder how it happened? Well I think that is the case here. Reading your story I can totally relate. No one besides one friend who live 20 some hours away knows what I'm going through. My family is understanding, thankfully, but it is still hard on them as well. As for my boys, I am so forturnate that they are willing to help out in any way possible. In fact Joshuah finally fell asleep on the chair after his tantruming and my older son Floyd went and go his special animals and his favorite blanket. One day we were in Wal-Mart as well and Joshuah took off, Floyd knew exactly where to find him and when he wasn't there we went to the front of the store where he was standing with a clerk. But before I could say anything Floyd told the clerk, "My brother took off, he has Autism and sometimes does that." Floyd is such a wonderful boy, and he is only 6 years old!Miss Josephine
HI I can totally relate to
HI I can totally relate to your stress. 18 months ago I totally lost the plot. I had one child diagmosed with autism, was working as a specialist teacher of 2 children on the spectrum and studying....then our youngest as diagnosed. I had known in my heart that he was on the spectrum but having it confirmed sent me into a tail spin. I only just feel like I've come out the other end of it.
I live in NZ away from all my family.... People I know here try to understand but how can they....really. The boys have been sick this week and I haven't slept more than 3-4 hours and most of that sleep was in a chair. Why is it they both want to sleep in the family room??? The youngest is still awake having napped most of the afternoon! I hope to find some friends on this site to chat to and to gain strength when it is so hard to do so....
We had temporarily moved my
We had temporarily moved my son's toddler bed out into the living/family room. When we put him in his own room he would run screaming into our room in the middle of the night. We then discovered that he felt safe and comfortable being in a room with the TV on (the living/family room). This was partly our fault because most of his life we've had him sleeping in our bedroom and we would use a Baby Einstein video on repeat as a way to get him to fall asleep. We've since put a portable DVD player in my son's room.
Thats when you either pull a
Thats when you either pull a mattress into the living room or lay blankets down
& sleep on the floor with them =) (hopefully you wont get stomped on!) MY son
is a blanket theif!!